My Story

The End Of The Beginning!

My day began as normal for ME..... I got up slowly, fighting the pain and telling myself, 'move and it will ease', as it often did! I began to write .....

Dear Diary,
..... I wonder if Dr B..... would view this as nuisance physical symptoms, but without a serious medical cause if he was the on feeling like this. You now have severe myalgic encephalomyelitis and fibromyalgia, but there is no pointer to anything serious, says my GP just the other day ......

This was it! The End Of The Beginning. The end of knowing and the beginning of not knowing. I had a diagnosis at last! Myalgic Encephalomyelitis and Fibromyalgia Syndrome!

But somehow it meant nothing, nothing at all. My pain continued, without let-up, my caily struggle was still there. But still it seemed to make a mockery of the pain I was feeling.

When we first met you had NUISANCE Physical Symptoms .....

You now HAVE what I would call SEVERE Myalgic Encephalomyelitis and Fibromyalgia Syndrome .....

There is still NO pointer to ANYTHING SERIOUS .....

These thoughts raced through my head and came to live with me for the following years. The Doctor's comments are all well and good if you don't have to live with the weird symptoms that I have on a day to day basis. They are more than just nuisance physical symptoms, that you can become accustomed to, they feel extremely serious. CFS/ME and Fibromyalgia, could well describe what is wrong with me. But was that it? nothing more? No assistance? No help?

What was I to do?

Daisy Line

The Beginning Of The End!

The Past .....

Good Days!




Bad Days!

The Future .....

The End Of The Beginning!

Daisy Line

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